After my brain hemorrhage, I looked for websites to guide me along. Short of that rare meeting when I could compare notes with another survivor, there was no place on the web to consult. So… Brain Bleed!
To summarize, I went from “hell” (how inadequate a word!) through “wild rides” to a present and constant knowledge of what I call “the arrogance of normalcy” – in other words like with many other disabilities, I am not “normal” but most people are unaware of that.
So while I am neither a doctor nor a health professional (PLEASE do consult them if you are looking for more than just support – this blog nor its participants are liable for any misinformation), I am starting this site because “someone needs to do this.” This site may re-appear in a different format at a later point.
As the creator of “Brain Bleed” I reserve the right to edit or block any contribution/contributor that I deem not to be contributing to a supportive environment. Disagreement is allowed but, please no flaming, rants or insults. Yes there is uneven care out there but this is not the place to bad-mouth any medical staff.
Below is a mind map I created that may guide me along as I create, time permitting, the various categories to help us all navigate better this rough terrain.
Brain Bleed/Hemorrhage Mind Map ©Marton 2011
Please feel free to comment so I can tweak the mind-map to reflect the community of brain bleed survivors.
I am so sorry for what you are going through. You will be in my prayers. http://TheLifeAtHome.webs.com has just added a prayer list. You can add yourself or anyone for others to pray for. I hope you have a wonderful Christmas. Thank you for sharing with us.