TheBodyChallenge

“The Arrogance of Normalcy”

Posted by piermarton on February 11, 2012
Posted in: Doctors, Family, General, ICU, Insights, LifeAfter, Nutrition, OtherSupport, Post-Rehab, Rehab, TheBodyChallenge, TheHospital, TheMindChallenge, Work.

I speak of this elsewhere, but it was clear from the ICU on that what was considered normal was a complete aberration. Being surrounded in rehab by many brain surgery survivors who could only mutter vague sounds to express themselves, regular activities like speaking, holding a pen or defecating have to be considered miracles, amazing victories!

Nothing can be taken for granted.

We are born disabled, and most of our lives are probably disabled in one way or another (but deny it)… and we will most likely die disabled.

Another one of those “beams in the eye” – so prevalent it is one more omnipresent blind spot.

EVERYTHING depends on YOU…

Posted by piermarton on February 11, 2012
Posted in: Death, Doctors, General, Insights, LifeAfter, Nutrition, TheBodyChallenge, Tips.

… the good and the bad.
You are in charge, even if you are dying.
(to be remembered, if possible, till the end)
–
Samuel Beckett
” Ever tried. Ever failed. No matter. Try again. Fail again. Fail better.”
“I can’t go on, I will go on.”
–
Don Miguel
“Don’t Take Anything Personally. Nothing others do is because of you. What others say and do is a projection of their own reality, their own dream.
When you are immune to the opinions and actions of others, you won’t be the victim of needless suffering.”
–
As Ajahn Sumedho calls one of his books:
Don’t Take Your Life Personally

Juices (My Boostraps)

Posted by piermarton on January 31, 2012
Posted in: Insights, LifeAfter, Nutrition, OtherSupport, Post-Rehab, TheBodyChallenge.

To regain my footing – I still have major fatigue/balance issues – (following my mother who lived till 93 thanks to the good care of my brother), AFTER I have listened and followed most official medical advice… I now

TRUST IN VEGETABLE JUICES!
If I can gather them: ginger, garlic, parsley, cucumber, beets, spinach, tomatoes, carrots, celery, cabbage, asparagus.
(a few samples from an on-going series)


The Healing Arts Series © Pier Marton 2011

The Healing Arts Series © Pier Marton 2011

The Healing Arts Series © Pier Marton 2011

The Healing Arts Series © Pier Marton 2011The Healing Arts Series © Pier Marton 2011

This Blog is Created to Help Others Along the Way…

Posted by piermarton on December 23, 2011
Posted in: BrainScience, Doctors, Family, General, ICU, Insights, LifeAfter, LifeBefore, MoneyAfter, MoneyBefore, MoneyDuring, OtherSupport, Post-Op, Post-Rehab, Pre-Op, Rehab, TheBleed, TheBodyChallenge, TheHospital, TheMindChallenge, Work.

After my brain hemorrhage, I looked for websites to guide me along. Short of that rare meeting when I could compare notes with another survivor, there was no place on the web to consult. So… Brain Bleed!

To summarize, I went from “hell” (how inadequate a word!) through “wild rides” to a present and constant knowledge of what I call “the arrogance of normalcy” – in other words like with many other disabilities,  I am not “normal” but most people are unaware of that.

So while I am neither a doctor nor a health professional (PLEASE do consult them if you are looking for more than just support – this blog nor its participants are liable for any misinformation), I am starting this site because “someone needs to do this.” This site may re-appear in a different format at a later point.

As the creator of “Brain Bleed” I reserve the right to edit or block any contribution/contributor that I deem not to be contributing to a supportive environment. Disagreement is allowed but, please no flaming, rants or insults. Yes there is uneven care out there but this is not the place to bad-mouth any medical staff.

Below is a mind map I created that may guide me along as I create, time permitting, the various categories to help us all navigate better this rough terrain.

Brain Bleed/Hemorrhage Mind Map ©Marton 2011

Please feel free to comment so I can tweak the mind-map to reflect the community of brain bleed survivors.